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Stigma towards a neglected tropical disease: felt and enacted stigma scores among podoconiosis patients in northern Ethiopia

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dc.contributor.author Deribe, K. en_US
dc.contributor.author Tomczyk, S. en_US
dc.contributor.author Mousley, E. en_US
dc.contributor.author Tamiru, A. en_US
dc.contributor.author Davey, G. en_US
dc.date.accessioned 2014-09-25T13:39:05Z
dc.date.available 2014-09-25T13:39:05Z
dc.date.issued 2013 en_US
dc.identifier.issn 1471-2458 en_US
dc.identifier.doi http://dx.doi.org/10.1186/1471-2458-13-1178 en_US
dc.identifier.other ITG-I2B; INTER; JIF; DOI; FTA; URL; E-only; Abstract; UPD56 en_US
dc.identifier.uri http://hdl.handle.net/10390/7505
dc.description.abstract BACKGROUND: Podoconiosis, or non-filarial elephantiasis, is a neglected tropical disease (NTD) characterised by swelling of the lower legs. When left untreated, this disfiguring condition has a significant social impact. This study aimed to describe the stigma experience among podoconiosis patients in Dembecha, Northern Ethiopia and assess potential associations between stigma and sociodemographic determinants. METHODS: The study was conducted in May 2012 in Northern Ethiopia. A questionnaire-based cross-sectional study design was used and stigma was assessed using a validated podoconiosis stigma scale including 'felt' and 'enacted' stigma domains. Enacted stigma includes the experience of discrimination such as abuse, loss of employment or prejudicial attitudes, while felt stigma is the perceived fear of enacted stigma. A multivariable linear regression model was used to explore determinants that may be associated with stigma. RESULTS: A total of 346 clinically confirmed podoconiosis patients participated in the study. The total mean score of all stigma scale items was 30.7 (Range = 0 to 96). There was a higher mean score of scale items in domains of felt stigma (21.7; Range = 0 to 45) as compared to enacted stigma (9.0; Range = 0 to 51). The total mean score of all stigma scale items appeared to increase with disease stage. A final adjusted linear regression model found an association between stigma and factors including monthly income, duration lived in the current residence, and disease stage, after controlling for confounders. CONCLUSION: Podoconiosis is a stigmatized disease with a clear social impact. This paper documented the burden of podoconiosis-related stigma and identified associated factors. Programs aimed at preventing and treating podoconiosis should incorporate interventions to mitigate both felt and enacted stigma. Interventions targeting patients should prioritize those with advanced disease. en_US
dc.language English en_US
dc.subject Noncommunicable diseases en_US
dc.subject Podoconiosis en_US
dc.subject Elephantiasis en_US
dc.subject Soil en_US
dc.subject Neglected diseases en_US
dc.subject Stigma en_US
dc.subject Sociodemographic aspects en_US
dc.subject Determinants en_US
dc.subject Social impact en_US
dc.subject Perceptions en_US
dc.subject Ethiopia en_US
dc.subject Africa, East en_US
dc.title Stigma towards a neglected tropical disease: felt and enacted stigma scores among podoconiosis patients in northern Ethiopia en_US
dc.type Article-E en_US
dc.citation.issue 1178 en_US
dc.citation.jtitle BMC Public Health en_US
dc.citation.volume 13 en_US
dc.citation.pages 1-8 en_US
dc.identifier.pmid http://www.ncbi.nlm.nih.gov/pubmed/24330684 en_US
dc.identifier.url http://www.biomedcentral.com/1471-2458/13/1178 en_US
dc.citation.jabbreviation BMC Public Health en_US


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